My son Sze Hong is the luckiest guy among the three siblings. He is most likely not affected with Pompe, he has got a very solid muscle. We can't be very sure now though. It's only when he has reached his adulthood then the doctor may agree to run test on him. We do not have so much budget for all the patients' family to run the genetic test. I will take for now that he is a normal and healthy kid, else how much worry can I carry?
He is now 6 years old, a smart little fellow but very bad tempered. I think it has to do with Pompe too. Since he is the ok one, I tend to give him less attention as compare to the girls. Me and Yee Seng are expecting him to be more matured but a lot of time he is still just a young boy that wants to have lots of fun. He will play whole day not eating nor napping if his batery is not flat. Then he will be exhausted and fell asleep as soon as his energy level approaching zero. He can sleep in any posture...
He loves all sorts of mathematical games. Now, he is crazy over millionaire. He can be playing this game from morning till night. Then the next morning, he will be asking for the same game again. He has been playing this game for more than a month, he still prefer this game over others. I think he will grow up to love money.
But he has very bad time management, he will defer his responsibility on homework and proper meal over play. Sometimes, he will do his homework till midnight. Sometimes, he will take him 2 to 3 hours to finish a meal. He does not like vegetables most of the time, this food will be kept in his big mouth for a long long time. He will be chewing it over and over again until he get scolded, then only he will start to swallow it...But when it comes to his favorite food, it will take him less than 10 minutes to finish off his meal, most of the time in his ugly mouth full manner.
Wrote in 1 Aug 2008
